Making a positive difference
in the lives of people living
with Cystic Fibrosis

Support and advice

Our professional and friendly staff are available Monday to Friday to answer your calls and provide free and confidential support to anyone living with or affected by Cystic Fibrosis in Scotland. Our trained volunteer force are also on hand to provide face-to-face support in the community. Click the button to find out about the kinds of support we offer and how to reach us:

Benefits help

We have 20 years of experience and expertise in helping our service users navigate the complex benefits system. We help you provide accurate and relevant information about how Cystic Fibrosis affects you to benefits agencies so you can receive a fair decision on your claim. Contact us to find out more.

New diagnosis

We know that a new diagnosis or Cystic Fibrosis, whether for children or adults, is a difficult time. We work with NHS Scotland clinical teams to help relieve some of the burden and stress by assisting people with their practical needs and providing a listening ear. If you’ve received a new diagnosis, please contact us and we would be glad to support you in any way we can. 

Our fundraising supporters are vital in enabling us to provide our services free of charge to people living with Cystic Fibrosis in Scotland. We run several events each year, and can also support you with your creative ideas to encourage your community to raise funds. Find out more about supporting us on our fundraising page.

Upcoming events

Cystic Fibrosis Scotland Golf Day 2023

After the success of the 4th annual Cystic Fibrosis Scotland golf day in 2022, we bring to you our 5th event at Swanston Golf Club in Edinburgh. For only £200 you can enter a team (4 golfers) and support Scotland’s Cystic Fibrosis community. You’ll receive a morning roll & coffee to start, followed by an 18 hole Texas Scramble, food, prize presentations, and a charity auction and raffle. If you would like more information or to enter a team contact our fundraising department on 0131 445 5590 or fundraising@butterflytrust.org.uk

Follow us on social media

Scroll to Top